TLP Founder Creates New Non-Profit Organization for Cystic Fibrosis

As many of you know, our founder Danitsia was born with Cystic Fibrosis.  At the age of 5 her family was hit with a disastrous event in where she lost both her brothers, Junior  was 21 and Rey was 12 at the time, to a fatal car accident in Venezuela.  The death of her brother Rey had always been a looming day in the life of her family because Rey, like Dani, was born with Cystic Fibrosis though he was misdiagnosed most of his life and did not achieve the diagnosis until age 7.  By then the damage to his lungs had been significant and other organs had been affected.  Once the tissue in your lungs has been scarred and damaged beyond function, it cannot be reversed.  Rey was on the verge of multiple organ failure and was put on a double lung transplant list, a liver transplant list, and a kidney transplant list. The odds of Rey surviving past the age of 18 were slim to none. 

The car accident had been a blessing in many ways because Rey would have suffered a slow, painful, and agonizing death to multiple organ failure due to Cystic Fibrosis.  Rey was killed on impact.  However, Junior was more than likely a carrier of the gene but did not suffer from CF at all.  He was healthy, smart, and compassionate and helped his family care for his brother and sister.  No one expected death to touch him.  It was a grave loss all around and the feelings associated with both brothers’ passing were difficult, conflicting, and confusing.  The family really had very little support to offer a grieving mother, a desperate older sister,  a father that pushed his own feelings down, and a little young girl that was very confused by it all and dealing with the fact that she had the same disease that would have ultimately killed her brother Rey.

It is because of this very fact we have created a new foundation called the Appreciate Every Breath Foundation.  Our efforts with this foundation is to solicit the donation of time by counseling and mental health professionals to members of the foundation, who are patients suffering from Cystic Fibrosis.  The foundation will also be extending benefits to caregivers, family, and friends of those affected by Cystic Fibrosis.  We are looking to build a network of qualified mental health professionals that are willing to donate one hour per week to the cause for one year. Once we have established a wide list of counselors that register with us, we will begin opening the doors to patients and their families for private counseling sessions.

All patients, family members, and friends will be allowed access to a private Discord Server where they can interact and help each other.  Our counselors will lurk about in that server to offer counsel and help as needed during their availability as some counselors will want to do more than just one hour. We will also hold group sessions and provide monthly support groups for patients themselves, spouses/partners of patients, as well as family members and friends of patients with Cystic Fibrosis.

Once a year our foundation will also participate in the annual “Adding Tomorrows” initiative with the Cystic Fibrosis Foundation to raise funds for Cystic Fibrosis research in an effort to bring us one step closer to a cure — a cure that will help thousands of affected families throughout the world.  It is our sincere hope that all our friends and family help us launch this effort.  If you or anyone you know would like to participate in a Great Strides Walk, Xtreme Hike, Cycle for Life or any other “Adding Tomorrows” fundraiser or if you are or someone you know is a mental health professional that may wish to donate your services, please let us know.  Email us directly at donate@aebfoundation.org.

Thank you,

Jake “Cips” Knoll, COO
The Last Prophecy Gaming, Inc.

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